Surgery in the Rearview Mirror: Reconciling Who I am Supposed to Be

Three years ago I was supposed to have ablation (where the uterus lining is burned out) which meant any inkling of having kids was over. However, because there was a golf-ball sized fibroid in my uterus that didn't show up on the ultrasound and because the sodium levels in my body were rising too high after the large fibroid was removed, my doctor didn't have enough time for the ablation. However, he believed that was causing most of my problems so I went on with my life with few problems, happy that I had taken care of it.

This past January I knew something had changed and we gave it a few months to see if it was a freak thing or not. An ultrasound in late April proved it wasn't– two golf-ball sized fibroids this time. My choices were to do nothing or to have my uterus removed. Because then it made sense that I was always running to the bathroom (the fibroids were pushing on my bladder), I opted to have the uterus removed this past Friday. It turned out I made the right decision because my uterus was full of fibroids and my doctor told me that once he saw all the fibroids in my uterus that it explained all my symptoms. 

But this surgery wasn't just about the physical problems I was having. I found out on a Saturday evening what my options were and on Sunday morning I was driving to early mass when I asked God to please help me learn what I'm supposed to from this experience (a blog I had recently written about) so I could move on from it.

To say that it's been a crazy journey is an understatement. 

I never had children– by choice because of certain things in my life, one being that I believe children deserve a lot of time and with the goals and dreams I have, I didn't believe I could give them that. I also was married before and because we divorced and a slew of other things had happened, it wouldn't have been a good situation if we'd had kids. I've had a parade of children come through my life but they never stay for any length of time. I seem to be just part of their journey for a short period and then they can go on. 

I know many women who had their uteruses removed but they all had had children while I was only birthing books, my goal and dream since I was six years old. There has been a lot of sadness over this but deep down I never really saw myself having kids. And yet now part of this journey is completely letting aspect go of that aspect of my life. Yet another loss for me to find hope.

Finally, my parents died when I was 35 and 43 and because they were older when they had my younger sister and I, I'm not willing to take the chance of not being around later as I sometimes feel parentless now (I have lots of "second parents" but we all know it's not the same without our "real" parents). I know they are with me although in a different way.

My life has been filled with loss and I realized that the way children have come through my life is much like life was in Naperville growing up. It was a very corporate transient town and I made friends only to have them move away four years later. It's a lot of work for me to keep grasping hope in the face of loss but that's why I choose to do work that makes me happy– creating through many avenues.

But there was another huge factor to this that most people don't know– I was deathly scared of spending the night in a hospital. I had successfully managed to avoid that since I was three and had a traumatic experience having my right eye muscle tightened. Several months ago I found my baby book where my mom had written it was traumatic for me and that I'd been allergic to the anesthesia (which then also explained why I had a rash after my surgery three years ago). Today there is no one to ask about the surgery because everyone involved (my parents, the doctor, my grandfather who was a charter doctor at that hospital) have died. Once more I had find my way through a maze of questions knowing I'll never really get the answers.

I can't explain how rattled the idea of having surgery and this time spending the night in the hospital left me. I felt as if I were facing one of my greatest fears in life. Somehow I did it but it didn't come without feeling constantly wound up and more tears than I would like to admit to. 

And yet something else came to play in this journey– my writing. I wrote 100 pages in May and I have finished the rough draft of a manuscript. So while there were times when I couldn't stop thinking about things like catheters and the fear of more surprises from my uterus as has happened before, I somehow managed to refocus myself to write 100 pages (and recover fourteen patio cushions). 

This current writing doesn't relate to what I was going through; it was all sorts of creative stuff for my manuscripts (yes, there is more than one) but it felt that because I had left that door open of asking to be open, God could let the writing through. In the face of my fear, it didn't paralyze me, instead it helped me push forward because I also hope that now that I have completely shut the door on having children, a new door will open, one that's been waiting for that to happen.

I believe everything happens to us for a reason– it's one huge way that allows me to go forward in the face of loss and change– and we are put right where we're supposed to be even though much of what happens to us doesn't make sense at the time it happens. I believe this is just one part of the journey that helps me continue traveling on this road of who I'm supposed to be.

Choosing What to Share

I spent a good part of yesterday working on two paintings (when I wasn't folding laundry and that I did because Greg was gratefully painting the trim on the outside of the house so I didn't think it was fair that he did that and fold the laundry). At some point I took a break from painting and I picked up my phone to check social media. But before I hit the button to take it out of sleep mode, I looked at the phone, wondered if I really needed to look at anything, and ended up putting it back on the counter where I had left it previously. Then I returned to my painting.

I am the first to admit that social media has played a huge part of taking my messages forward, particularly in my days working to help the suicide bereaved. I realize that if you lost someone to suicide today, you will have a drastically different experience than me because you can easily connect to people via the internet whereas it took me years to find other bereaved siblings. And now my messages have changed to sharing how I've moved forward through my losses by using my creativity, at least the visually creative aspects of my life (sewing, painting, cooking, etc).

However, I also know there is a line for me of what I choose to share, when I choose to share it, and how much time I spend looking at it.

While it might seem that what I create visually is how I spend the bulk of my time, the reality is that my writing is still what's most important to me. It obviously takes longer for me to share that so in the meantime (as I wrote about balancing goals last week), I share the visually creative items. I also found out in my early Facebook years that if I shared what I was writing, I never finished it.

I stopped talking about my writing because I realized it was something I have to keep to myself until it's completed. Most people in my daily circle of life don't know what I'm working on for the same reason. And yet there are many times I so badly want to share things but I know the time isn't right so I let it go (and probably post a photo of Lilly instead!).

When I went for my last spiritual direction visit with Fr. Gene, at the Norbertine Abbey here, one of things I told him was how I find that I'm not supposed to always share the journey that I'm on, that instead I'm supposed to wait until it's over when I can look back at the road and reflect more on it. It's only then that I can see what it is about my journey that would be most meaningful for others to read about.

And in that same vein, the Wall Street Journal recently published an article about letter writing. One line stood out for me where the woman said that even though we seemingly share more of our lives by constantly posting on social media, we aren't really sharing of ourselves like we did writing letters.

Writing letters was one way that I honed my writing skills early and now I'm finding that as I've pulled back in sharing some aspects of my journey, they are instead finding places in my manuscripts. Once again, it's about balance and deciding what I should share now and what I should save for later, to be shared in another way as part of a bigger project.

A New Journey

I am convinced that sometimes the universe tells us we've been sitting too long and need to move it along. As I post this to social media, today is my birthday, December 12. It's also the feast day for Our Lady of Guadalupe. And yesterday on December 11, my job went half time. 

No need to discuss the job because it's not about that or about the loss of income that I'm trying not to focus. When you find out that your job is going half time and the date it begins is the day before your birthday– which also happens to be the feast day of a saint whose presence has unknowingly been part of your life longer than you're aware– you know the friend who sits behind you in church was right when she said, "Guadalupe has something better for you to do."

We all know I have many things I'm working on, many things I want to do. The hardest part has been finding the time to do them all. Part of the problem my husband Greg will tell you is that I work hard, I'm a Midwesterner who listened to my parents when they said, "What ever you're doing, make sure you do the best you can at it." While I work at home with a lot of flexibility on a military grief study, I often found myself stifled by a 40-hour work week in the sense that I felt I had to always be available if they needed something.

No more. Now half my week has been freed and I believe it's Guadalupe– because things always happen around my birthday and during Advent– telling me that now is the time, to get focused and get busy on that list. I have one major manuscript I'll be tackling next year along with two others. I obviously have swimwear and clothes to make along with the handbags and such. And hopeful sales will come along with the creating.

I'm not totally clear what this road looks like. And because we're in the midst of the holiday season, I also know I'm somewhat limited on what I can do right now. Instead, I'm resting up and gearing up for that different journey to go into full swing right after the new year, after a trip to Los Angeles.

It's not going to be an easy road. When you've spent much of your time working with grieving people- which can be taxing– you also find that while other aspects of your life make you happy, there is a sense you aren't doing enough because you've been working in life and death. That's something I have to work out, to let go of, because my work is important, just in a different way than hearing people's stories. Instead, it's about living an authentic life, the life I've always wanted– of which I haven't quite reached– and sticking to it even when I'm not quite sure how to get there.

Life isn't easy. It's always full of surprises we don't like. But if we embrace what might look like is two steps backward but is really five steps forward, we'll get where we want to go.

Sharing Stories with the World

"My reward is the reader who thanks me for tackling themes in the book. That person's comment is worth more than twenty weeks on the best-seller list. I write to touch people, and when they respond the circle is complete" – Rudolfo Anaya in the afterword of Tortuga

I'm sitting on a finished manuscript and– for me– it's not a pleasant place to be because I want to share it with the world. Often, Greg and I make comments or jokes about things relating to the characters in the book but we no one else can relate to them because only a handful of people have read it.

Figuring out what to do with it has been a quandary for me the past few months. I've self published all ten of my books since the second printing of my first book about sibling suicide loss. At the time, the publishing industry was very different than it is now– it was much harder to get your book into the marketplace. Now you pretty much hit a button on your device and it's released to the world. That means, unfortunately, my books are lumped with a lot of badly written books and that also makes it more challenging to be taken seriously when I've been working at this for almost my entire life.

I thought I would spend this year trying to find an agent to publish That Cooking Girl, my latest  completed manuscript and one that I believe is my best written work yet. However, as this year comes to an end, it doesn't look like that's going to happen. It's a tough balance of figuring out where to go from here– because I don't have a huge social media following nor book following, I could end up with a publisher where I'd still be doing all the marketing (such as I have been for sixteen years since my first book came out).

I believe I have stories to share with the world and I often feel as if I'm standing on one side of the Rio Grande Gorge up in the northern part of New Mexico and I can see the other side– where I want to be– yet there is no bridge for me to get there and I'm not sure how to cross.

I'm someone who wants to make things happen. Even if I don't get exactly what I'm pursuing, by continuing to forge forward, other opportunities always come my way. I've honestly prayed about what I'm supposed to do, asking for a clear answer, and yet that hasn't happened. In fact, several times my prayers have been interrupted by "outside life" which at first I found irritating until I realized that maybe it was part of the "do nothing" message I must be receiving.

Rudolfo Anaya is right– it's about touching people and that's all I've ever wanted to do. But sometimes building it and believing they will come doesn't always work as well as one hopes. Still, I'll keep at it. I have a plan for this next year and perhaps that will be the manuscript that finally breaks open the writing career that I've wanted to have since I was six years old. And in that process, That Cooking Girl also will find an audience.

Thanksgiving

Before my friend Bonnie died– just three weeks after my dad in January 2006– each time I would go to her house, she usually had something to share with me. She was in her late sixties when I moved across the street (although I got to know her better in the years after I had moved a few miles away) and I would often spend evenings with her sewing or working on some other crafty project. One time she had my first husband bring back nautical rope from a trip to Portland, Maine (he worked for a company based there) and she gessoed the yellow rope white and we made shell wreaths. That's the sort of things Bonnie liked to do.

Often she would have pages in marked in Martha Stewart's magazine for me look at or family items pulled out to share stories about her family or her husband Greg's family. 

The tablecloth above was given to me after she died by her daughter Sadie who wasn't into giving dinner parties and had no use for it. I'm not sure the last time it was used– or the matching napkins. Bonnie bought it in Middle East (most likely Saudi Arabia) during the time they lived there because Greg worked for an oil company. 

When Bonnie was dying of cancer, I spent as much time as I could with her and at some point she started to ask me which of her things I might like to have. Or she offered certain things she knew Sadie wouldn't want (sadly, Sadie– who has since died, too along with Greg and Bonnie's son Gordon)– had a prescription problem and just about everything Bonnie gave her was sold to pay for drugs, including many quilts that Bonnie had made. 

One afternoon as we sifted through fabric she asked me if I would like her dining room table. There was one reason for this, one thing I really wanted was a table that would fit twelve people around it. I have no idea who those twelve people would be, but I just liked the idea of having that many people around one table. 

It was never mentioned again because she died not long after that and I didn't bring it up because it wasn't my place to. I'm sure she never mentioned it to Sadie, simply because she was on a morphine drip and didn't always remember what we had discussed. The table got sold, but the tablecloth and napkins were given to me.

In the nearly eleven years I've had them, I've never used them. My current table doesn't fit that many people and with the many losses in my family, I haven't had reason to put that many people around the table. Any family events I had before my mom's death when I was living in Illinois were at her dining room table (now in the loving hands of my sister Karen) with a tablecloth of mine or Mom's. Bonnie's tablecloth always was pushed to the bottom of the drawer.

However, on Thanksgiving this week, I will gather the entire David and Delcia Rusk family at my dining room table (we'll be bumping my desk– which is my parents' kitchen table and a leaf for it) up to the dining room table. I'll cover it with Bonnie's tablecloth and we'll use the napkins that match it.

We'll top the tablecloth with Greg's and mine wedding china combined with Delcia's mother's china from Argentina. 

It feels more significant than ever to recognize Bonnie in my life. My mom was the one who instilled my creativity in me, always encouraging me to write/draw/create/sew, but it was Bonnie who took it to the next level teaching me so much more. As I continue to forge my lifestyle brand– Chelle Summer– forward, all that Bonnie taught me is going to yet another level.

Using her tablecloth is a way of saying thank you.

Be Fearless

While I don't know why, I have let fear drive much of my life. I can see it when I travel back on my memories of various events. In particular it cost me being a better runner and it was after high school that I vowed I wouldn't ever let fear hold me back again.

But I know that I have still done it and now as I undergo a change in my work situation, I'm finding myself remembering how often I have worried about various things and how I worried endlessly only for them to work out. And then I've wondered why I put so much energy into worrying. 

Why do we worry so much? Is this a life lesson we're supposed to learn? For me, I believe it's more about learning to trust, to have faith, to know that I don't have to soak up my energy into fear. Instead I need to be fearless.

I know that life is short, it's something that drives me daily to make the most of each day. The less the fear we have, the more authentic lives we are living.

Don't wait. Don't let fear hold you back. Be fearless and make whatever it is you want happen. That's exactly what I'm doing.

One Big Goal, A Bunch of Small Steps

It's easy to set goals, especially big goals. Believe me, I've been the queen of them since I was six years old and knew I wanted to write books. The hard part is that once you set that goal, you realize how long it will take to accomplish the goal– could be an entire lifetime depending on what the goal is– and that's when despair sets in.

However, what we often forget is that in the process somewhere we need to break our big goal down into smaller goals. Those smaller goals are what will keep us going while the accomplishment of the big goal remains in the far-off distance.

As I'm embarking on some forced changed in my life- forced change that hasn't been completely defined yet which leaves me hanging in limbo although trying to remind myself there is nothing to fear, all will work out– I've realized the universe is poking me. There's a list of things I've been putting off doing for no reason other than they just never make it to the top of the list (doesn't it seem like the top of the list is always crowded but there are always items we want to do, mean to do, but they never become priorities?). 

I've also realized something else, how much social media has affected my need to be done now, yesterday, last year, so I can post it. With a new goal ahead of me (one that I'm not quite ready to reveal, mostly because with my writing I seem to never actually do the writing when I share what I'm working on), one that I believe will take me about a year to accomplish, I see that I need smaller goals as I go along otherwise I'll become frustrated and work on something else. 

My hope is there are some things to share in the process, especially some of the smaller goals that I'll be accomplishing on this journey. In this current moment though, I'm not exactly sure what those smaller steps will be. What I do know is that while there is a big chunk of this challenge that's new, some of it isn't. I'm starting something new, I've been here before. Eventually I'll start moving forward on the road and I'll see where the stops are, where the road turns into another one.

For now, however, away I go.

Entertainingology

I was reading a magazine the other day and, because it was a summer issue, a big focus was about summer entertaining, more specifically, how you do it. As I read the editor's letter that opened the issue, she talked about how one way to make entertaining easily is to think of the worst that can happen at a party because then nothing that bad will happen. The advice was silly and it seem unhelpful to me. So it got me thinking.

I began to think about why I find entertaining easy when many people see it as a challenge, one they often are too intimidated to take on (many people would rather attend a party than throw one). My parents didn't entertain a lot when I was growing up outside of family events, but those always sent Mom's stress level out the chimney because she wanted everything to be perfect. 

My own first forays into entertaining were high school cross country team spaghetti dinners when I started coaching as graduate student. And then when I married the first time, I had a Texan on my hands whose parents always seemed to have people over for meals.

It wasn't easy when I started. I could tell a lot of stories about things that have gone wrong (although I never had a squirrel running through my house via the chimney like my parents' next door neighbors did one Christmas Eve), but mostly what I've realized is that it's about practice.

The more you entertain, the better at it you get. It's no different than many of the other activities that I find fulfilling: creating, sewing, writing. The more I do them, the better I get at them. An early first married dinner party of trying to make chicken piccata taught me not to make something that you have to cook at the last minute and stand by the stove. Save that for smaller dinners. Instead, make something you can slide into the oven to bake for forty-five minutes. It gives you more time with your guests, too.

For me, I learn best by experience, by trying something. And isn't that what life is about? Trying new things, challenging ourselves? The more we do it, the more we grow. And the more we feel like our lives are well lived.

Life

I know it's been a while since I've written.

I think about blogging; it's on my desk calendar where I write my daily tasks. But then I don't do it. And I don't do it because I haven't felt like I've had a lot to say. No, that's not true– I get ideas but then I think maybe I wrote them before. Or I think that maybe they aren't good enough to spend the time on. 

And there you have it– my life is a challenge to figure out how to best spend my time. I have so much I want to do and time often feels fleeting to me– I believe partially because of all my losses, I know that life can change in an instant. I hate that I get tired. I get up before 5:00 am and many days I can't believe when 3:00 pm hits and I wonder where the day went.

There is much I want to do and I finally decided today that my motto should be, "Think less, do more." It's July, it's summer. I want to make the most of these warm months. I need to worry less about experimenting making clothes and having them come out badly. I just need to make them. I need to keep writing and worry less that I'm writing crap and just keep writing.

Life is short but it's also a balance of being present where we are with where we want to be. And my goal this month is have a better idea of how to achieve that by the time August arrives.

The Authentic Life

I sometimes forget what a challenge it is for people to live an authentic life. And when I say that, I mean to live the life they believe they are supposed to live. It's something I strive for daily and I think that because I've worked so hard to make it happen– while not completely as I do have a full-time job and I'm not yet devoting my entire days to my writing and Chelle Summer– that I forget how much work it's taken to get where I am. And I believe that in my future I will be working full-time for myself; it's what I strive for daily.

I also had forgotten about this photo– one of a series that Lois Bloom had taken for me, I believe not long after I'd gotten my surfboard. We were talking not long ago and I don't remember the rest of the conversation but I did say to her, "You know you were the reason that I realized I could own a surfboard and make it part of my life."

It was all because after she and Sam picked me up from LAX when I flew in from Chicago (where I was living at the time) to speak at a conference, I told them that a friend had asked if I was going to surf on the trip. I said no, that I didn't have a board, nor had I brought a swimsuit. 

"Why not?" Lois asked, turning her head to the backseat where I was sitting in the car. "You can rent a board. You can buy a swimsuit."

She was right– I did all of the above, spending the next few days on a rented board after taking (yet another) surfing lesson. And from there I bought my own board. 

While my shoulder has kept me off my board for about a year now, surfing is part of my life. I worked to carve it in just a I started to carve in time to write early in the morning. And I've carved in time to working on my sewing projects and building my Chelle Summer brand. 

I watch less television, I go to bed earlier so I can get up earlier, but I've made time for what makes me happy. It's the first step to living an authentic life: just like being taught to brush your teeth means that eventually (hopefully!) it become part of your daily routine, so is making time for what makes me happy. I long incorporated running into my life and I often say it's as much as part of my routine as brushing my teeth. But teaching myself that also has helped me figure out how to add in writing and creating to my daily routine, too.

I know that none of us are promised anything. We have this moment now and we don't know what's ahead. And while we can't always control some of the responsibilities we have, we still have the opportunity find some time for ourselves because by doing that, we're creating our own authentic life.

Welcome to Chelle Summer!

After years of of a variety of web sites, we have merged all my work into one place. 

Chelle Summer.

Here you'll find links to my books (and there are more of those to come!), the inspiring blogs I'm known for, recipes from Chef Chelle, and– soon– a store for the Chelle Summer bucket bags and tote bags.

The focus of Chelle Summer is also the idea of bringing together what inspires me and sharing that with you and the world. After spending many years helping people through grief and loss, my concentration has turned to living the creative and inspiring life I have dreamed of. And by living it, I'm showing that despite whatever happens to you, you can go forward and have a great life.

You'll find links to social media where I often share the items that inspire me or what I create. And of course the awesome photography of Pamela Joye (who also built this site). 

Take a look around. Pull up a chair and stay awhile. Connect with us on social media.

And get ready for what's next. First up? The Chelle Summer store, of course.